Kegiatan kami

Pendidikan

Meningkatkan pengetahuan dokter spesialis kulit dan kelamin, dokter spesialis lain, dokter umum, dan petugas kesehatan mengenai penyebab terjadinya EB, terapi serta penatalaksanaan EB.

Edukasi Sosial

Membuat program untuk meningkatkan “awareness” masyarakat tentang EB.

Dukungan Pasien

Memberikan edukasi kepada pasien EB mengenai penyebab penyakit EB, penatalaksanaan luka pada EB, bantuan psikososial, guna menunjang dan meningkatkan kualitas hidupnya.

Penelitian Berkelanjutan

Melakukan penelitian secara nasional & internasional dengan berbagai negara, mengenai penyebab, terapi dan penatalaksanaan EB secara paripurna.

Kerja Sama

Menjalin kerja sama dengan organisasi/ institusi terkait di dalam dan di luar negeri dalam penatalaksanaan EB secara menyeluruh.

Bantuan Medis

Memberikan bantuan medis antara lain pemberian sarana perawatan luka dan obat-obatan untuk pasien EB yang memerlukan.

Penggalangan Dana

Mencari dana untuk menunjang pelaksanaan program.

Mari berkontribusi dalam Kegiatan kami

IKUT TURUT SERTA

Galeri Kegiatan Kami

Yes! We run for butterfly children!
Yes! We run for butterfly children!
Participants of RBC showed their smile after finishing 10K for DEBRA charity,
Participants of RBC showed their smile after finishing 10K for DEBRA charity,
One of our committee after 10K virtual run to raise awareness for butterfly children.
One of our committee after 10K virtual run to raise awareness for butterfly children.
Run for Butterfly Children was held to raise awareness of EB (2021).
Run for Butterfly Children was held to raise awareness of EB (2021).
Webinar about EB management for practitioners and patients of EB (2021),
Webinar about EB management for practitioners and patients of EB (2021),
Primary dressing with modern wound dressing hydrocolloid, separation of toes, and secondary dressing with self-adherent tape elastomull.
Primary dressing with modern wound dressing hydrocolloid, separation of toes, and secondary dressing with self-adherent tape elastomull.
Wound EB management training for the patient, dermatologist, and trainee using hydrocolloid and hydrogel (2017).
Wound EB management training for the patient, dermatologist, and trainee using hydrocolloid and hydrogel (2017).
Wound management training for the patients dermatologist, and trainee (2017).
Wound management training for the patients dermatologist, and trainee (2017).
With the patients group from west Java and Bandung, their families, and trainee (2017).
With the patients group from west Java and Bandung, their families, and trainee (2017).
We conducting socialization and management of EB for families and patients group providing education and training all about EB and how to manage wounds and skin of EB (2017).
We conducting socialization and management of EB for families and patients group providing education and training all about EB and how to manage wounds and skin of EB (2017).
Workshop for dermatologist and trainee how to manage EB wound in DDEB, JEB and EB simplex supported by pharmacy using phantom.
Workshop for dermatologist and trainee how to manage EB wound in DDEB, JEB and EB simplex supported by pharmacy using phantom.
Workshop for dermatologist and trainee how to manage EB wound in DDEB, JEB and EB simplex supported by pharmacy using phantom.
Workshop for dermatologist and trainee how to manage EB wound in DDEB, JEB and EB simplex supported by pharmacy using phantom.
Workshop using model (phantom) and modern wound dressing for each wound type supported by BSN.
Workshop using model (phantom) and modern wound dressing for each wound type supported by BSN.
Our team: Indonesian Pediatric Dermatology Study Group.
Our team: Indonesian Pediatric Dermatology Study Group.
Workshop using model (phantom) and modern wound dressing for each wound type supported by BSN.
Workshop using model (phantom) and modern wound dressing for each wound type supported by BSN.
Meet the expert and patients of EB.
Meet the expert and patients of EB.
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022
EBAW 2022